Sunday, December 13, 2009

To know details about Aadhar please see the first post dated Nov 5 2008. Aadhar is a registered trust and all donations to Aadhar are eligible for exemption of income tax under section 80 G of IT Act.
To all doctors who want to send patients, please send them to

Dr Rajeshwary Kulkarni
A- 4/25 Paschim Vihar.
New Delhi-110063.
Mr. Arun
Merigold Chemist & Druggists
Shiv Market A-4 ,Paschim Vihar
New Delhi-110063.
We need the prescription on the hospital letterhead per chemo cycle of the patient. Exact dose needed is to be written. For every patient who comes we get the medicines from the retailers and provide it to them within 2-3 hrs. Besides this the patient has to bring 3 passport size photos and the prescription needs to be signed by the senior doctor with his / her stamp. A small summary of the patient helps.
Please bear with us. We need to do all this to prevent stealing , misuse and pilferage of these expensive medicines. The signature and stamp is important as we have had cases of people other than doctors,sending us patients with demands of something like 10 vials of leunase. Each leunasevial depending on potency costs between 5-10,000/- Rs. All this was written on plain paper with a signature nobody could read. So plaese help us help them.

Thursday, August 6, 2009

Counselling centre for cancer patients.

We at Aadhar have decided to move on a little. We plan to start a counselling centre for cancer patients and their care - givers here. I have found that the family is often confused and ill informed about the diagnosis and the treatment that is going to be done . We plan to start by talking to the patients and their relatives and educate them regarding the disease and treatment. There is also a lot of general information regarding the side effects and measures to be taken to reduce those and make the treatment more comfortable.
We hope to be able to help at least a little.

Tuesday, March 10, 2009

Ravi Rahul.

Ravi Rahul was an 8 year old who was among the first few children put on support of Aadhar.
This article is a 'shraddhanjali ' for a noble and brave soul.
Ravi first developed swelling and pain in his foot, alongwith fever.His father took him to a well known government hospital where he was investigated and treatment was started for tuberculosis. He was kept on treatment for almost one year but the response was not satisfactory. A repeat biopsy completely changed the diagnosis to Ewings Sarcoma- a type of
bone cancer. He was taken by his parents to Rajiv Gandhi Cancer Hospital. There he was told that the child needed to be started on chemotherapy and this would be followed by surgery. Chemotherapy was started and the estimate for the surgery was Rs.20,000/- . The doctors were looking to remove the tumor completely and expecting a very good prognosis as the tumour was very localized at that time.
After the third chemotherapy the patient just stopped coming for follow-up. At that time we had just started working in Rajiv Gandhi Hospital. The oncologist there Dr.Gauri Kapoor asked us if we could find out what had happened. One volunteer went to the address given and met the father. The father was a schoolteacher and said he did not have Rs.20,000/- so thought it was all pointless to keep going to the hospital.We promised to raise money for the surgery and asked him to again attend the OPD. This time I met Ravi Rahul. Such a bright and sweet child. It was an absolute pleasure to talk to him.Always cheerful and optimistic.
I asked him about his school and found him to be really smart. An eight year old who was studying in the village school but could read the word Ophthalmologist from my card .I was really impressed. Ravi underwent his surgery successfully and I found him cheerful as ever during his post operative stay. Part of his foot had been amputated. He was later fitted with a prothesis.
But the trails and tribulations were not over yet. One fine day Ravi's father suddenly decided he could not cope any longer and just abandoned the family and disappeared. His mother a young lady about 30 yrs of age was just left alone to cope with this mountain of a task of getting treatment for her son.
Fortunately for them her brother-in-law helped a lot by accompanying Ravi to the hospital for treatment. I kept meeting him in the hospital off and on. One day I discovered that this little boy inspite of going through such debilitating treatment, was taking tutions for children smaller than himself to help his mother. She did not know about it. He told me that sometimes he even managed to help older kids in maths. I really felt about two inches tall in front of this lad. My only thought was ..WOW!!!
Ravi made a good recovery and went back to a normal life for about 2-3 years.
Unfortunately the disease came back after a couple of years. Maybe it was due to initial delay in treatment. It is difficult to say. But there were multiple secondaries in the lungs. Chemotherapy was tried again but to no avail. The disease was seen to be progressing. Finally his chemotherapy was stopped after counselling his mother because it was giving him nothing but added pain. Ravi's mother just said that at least she was able to do best possible treatment with the help she got and took him home. It is now about 5 yrs since Ravi has gone but I still remember his face and smile as clearly as if he was standing right in front of me.

Wednesday, February 25, 2009

Completion of eye camp activities.

It has been a really hectic 2 months .Following the eye camp on the 21st of December , january was busy looking after the OPD and the surgeries. After that the regular follow up of the surgical cases.
In the last month 5 new cases have been added to the list of kids on support for cancer treatment.We have also added Kalawati Saran Childrens hospital and Shrimati Sucheta Kriplani Hospital to our list of referring hospitals.
A number of people have volunteered to adopt a child for treatment.We are sending the patients profiles to these donors.
All of us at Aadhar are greatful for all the support we are getting.

Tuesday, January 20, 2009

Eye Camp

Hi, I am back after a break. That was mainly because life has been really hectic with all the camp work. We were having regular OPD in the morning and evenings and surgeries in the afternoon.So far 15 surgeries have been done and some more are pending.
Two more donors have adopted children for treatment.This really helps us a lot.Every month we will provide them the receipts for the medicines purchased for those children and their progress.
Over the next few months we are going to gradually increase the group we support to include young adults upto the age group of 30 yrs. Patients in this age group generally dont have much of an income or savings because they have generally just started working and parents are mostly retired . We hope for continued generous support from our donors ,so that we can go ahead with this work.