AADHAR ANNUAL REPORT YEAR April 2013 - March 2014
Aadhar is a registered charitable trust set up in 1998 which was started by a group of professionals in an effort to help the poor and underprivileged cancer patients get adequate medical care and treatment.
There are four main activities of the trust. These are:
1. Child Cancer Fund
2. Fund for young women with cancer.
3. Counseling Centre for cancer patients and care-givers.
4. Eye care services.
Cancer is a disease that takes a huge financial and emotional toll on the patient and the family. Due to the substantial costs of the medication to treat the disease, poor patients are often unable to finish their treatments even when treated in government hospitals as medicines may sometimes have to be purchased from other sources. At times this may mean that the family needs to sell their meager possessions in order to continue the treatment which further worsens their financial conditions. However, if the patient cannot get the required funds to purchase the medicine, the patient eventually dies due to the lack of treatment. This loss is further compounded if the life lost is that of a child. Aadhar attempts to identify and assist such poor families, especially if the patient is a child. With increasing improvements in the management of childhood cancers, a complete and comprehensive treatment has a high chance of being successful allowing the child to grow up to lead a productive life.
The trust has expanded its scope this year by starting a fund supporting young women suffering from cancer between the ages of 21 – 40 yrs. This is our second target group, children being the first. We at Aadhar, being well aware of societal set up in India knew that this is a group that is often neglected in favor of males. Therefore, it was important to support a young woman not only to help her but also her family, especially her children.
Summary of our activities from April 2013 to March 2014.
The Child Cancer Fund:
1. Total number of new patients registered 47.
2. Total of 322 chemotherapy cycles administered for old and new patients.
3. Amount spent on treatment cycles was Rs. 17,09,809/-.
From the inception upto March 2014 we have raised more than 1Crore and 10 lacs in our effort to help children with cancer.
Children on support came from the following hospitals:
- Lok Nayak Jai Prakash Narain Hospital
- Guru Teg Bahadur Hospital
- Sir Ganga Ram Hospital
- Shroff Charitable Eye Hospital
- Rajiv Gandhi Cancer Institute and Research Centre
- Dharamshila Cancer Hospital
- All India Institute of Medical Sciences
Blood and blood products are a repeated requirement especially in the treatment of leukemia’s. Parents find it very difficult to get a donor each time. To help them in time of crisis we are putting together a list of volunteers who would be ready to donate blood for a patient. Volunteers of Youth against Cancer especially are keen to help these children.
A. Fund for young women with cancer:
This fund came into being in October, 2012. So far eight women have been helped through this fund. The amount spent on the treatment of young women with cancer by radiation and chemotherapy is approximately Rs 1,20,000.00. so far.
We have still not informed too many doctors about this fund. We have to work out an efficient method of management. Once the availability is made known then doctors send patients of all ages for help and it becomes difficult to refuse. The other factor was that in the last year the burden on the child cancer fund increased a lot and it was becoming difficult to manage. The kind support and donations from our well wishers helped a lot.
B. Counseling Centre for cancer patients and care- givers:
The counseling centre has been started in October, 2012. The aims of the centre are to:
• Decrease patient’s sense of alienation by introducing them to others in similar situations, especially survivors who have beat the disease,
• Reduce anxiety about the treatments,
• Assist in clarifying misconceptions and misinformation and
• Lessen the patients’ feelings of isolation, helplessness and neglect by others.
As a Counseling centre, we aim to provide patients with a more comprehensive support system, enabling the patients and their families to be better prepared to deal with the cancer and its fall out in every way possible.
A very holistic approach is being planned where we are involving homeopathic and ayurveda specialists also in our approach.
Besides helping the patients, the Counseling Centre also aims at assisting and aiding the families of the cancer patients to cross this hurdle. Therefore, in addition to the above points the Centre also
• Informs and educates patients and relatives about the disease, its treatment and other relevant information such as common side effects etc.
• Answers queries patients may have about the disease and about positive health practices such as diet, exercise, etc.
• Teaches stress management through relaxation techniques, meditation and yoga.
• Provides advice on nutrition from a dietician about what to eat, what to avoid, how to prepare healthy and wholesome recipes.
• Assists with general information such as how to get wigs and other prosthesis, details of genuine dealers who supply, on sale or hire, wheel chairs, crutches, walkers and other things required for these patients etc.
The Counseling centre is being run with the help of highly trained professionals such as Dr. Aradhana Sharma who is a highly qualified psychologist having her own practice. She is also working in various schools as an advisor.
Dr Sanjiv Kumar has agreed to be our advisor on ayurveda.
As part of our pro-active outreach program, our plan is to organize awareness drives in various schools. This will be a part of our campaign to spread awareness about cancer especially regarding substance abuse and environmental factors causing increased incidence of cancer. Another purpose is to create sensitivity about problems of patients suffering from cancer.
C. Distribution of free literature:
The following booklets and pamphlets were printed for free distribution to increase awareness about cancer and treatment options available :–
- Cancers found in Indian Children.
- Booklet on Cancers of the respiratory and gastro-intestinal tract.
- Cancer –Ek Ghar Ki Kahani which is a drama script on the three commonest gynaecological cancers.
- Booklet on cancers caused by HIV virus by Dr Manoj Sharma. This specially addresses young potential parents who may be responsible for the birth of HIV positive children who are at higher risk for certain cancers. Besides this, children with HIV positive parents may be orphaned at an early age and face many problems.
- Cancer Chikitsa- Isse Saharsh Kaise Poora Karein.
- Hindustani Auraton Mein Cancer-Cancer Ki KAhani, Jo Auraton Ne Na Jaani.
- Cancer Chikitsa, Gahan Chikitsa
D. Eye Care Services:
An eye camp was held in December 2013 at A 4/25 Paschim Vihar, New Delhi where about 225 patients attended the OPD held on that day. Patients were given appointments and one complete eye check up as needed was done.
25 patients underwent surgery for cataract with intra-ocular lens implant. The expense of the eye camp was about Rs 1,50,000/-.
In summary, this year Aadhar has been able to help cancer patients, children and women, with chemotherapeutic medication and radiotherapy amounting to a total of approximately Rs. 18,29,809/-( Rs Eighteen lakhs,twenty thousand eight hundred and nine only.). Further, Rs.1,50000/- have been spent on the eye camp held in the year 2013-2014. We have also successfully started Aadhar’s Counseling Center for cancer patients and their families. We hope to build on these achievements next year and provide further support to cancer patients, their families as well as extend our medical services to the community.
Contributions were received by way of:-
- Direct remittance to the account.
Note: Aadhar has received FCRA approval for accepting donations from abroad and all donations made to Aadhar are eligible for benefits u/s 80G of the Income Tax Act, 1961.